We’re thankful for you!

Almost two years of COVID, a month of Black Friday, Halloween, Cyber Monday is coming, and we’re already seeing Christmas & Hanukkah. My head is spinning and my internal clock is all messed up!

Hidden and almost lost in the midst of all of the hubbub is Thanksgiving.

For us, it’s a time to reflect, give thanks, and be reminded that it is people that are most important. This past year we’ve had wonderful small MLD Family Gatherings™ across the country, and sadly, lost way too many special MLD loved ones.

My last “great” family time with my mom before her passing earlier this year was at Thanksgiving … and that reminds me of 26 years ago when Teryn and I had Thanksgiving dinner and drink 😉 in the hospital with our daughter, Darcee, before losing her in December.

MLD Foundation is thankful to be serving the MLD Family™ for over 20 years!

We’re thankful to have a 5th biopharma publicly announce their work on another type of MLD gene therapy – Affinia Therapeutics (we’ve been working with them for several years under NDA). And we continue our NDA-protected work with a sixth unannounced biopharma.

We’re thankful for the German and New York MLD newborn screening pilot studies, and for the Expert Advisory Group we are managing that is preparing our NBS guidelines and federal RUSP nomination package.

Most of all … we are thankful for you … the wonderful, kind, caring, passionate families, researchers, and clinicians we have come to know over the past two decades.

Give With AmazonSmile - Disability Rights Texas

Every time you shop, even on Black Friday, the Amazon Foundation donates to MLD Foundation!

… at no cost to you! You shop. Amazon Gives!

Those small donations add up quickly when hundreds of you select MLD Foundation for your Amazon Smile beneficiary.

How to sign up for AmazonSmile

Laptop/web browser:

  1. Visit smile.amazon.com
  2. Sign in with the same account you use for Amazon.com
  3. Select your charity – MLD Foundation of course!
  4. Start shopping!
    Remember to always start your shopping at smile.amazon.com to generate donations for MLD Foundation.
    Tip: Add a bookmark to make it easier start your shoping at smile.amazon.com.

Mobile phone:

  1. Open the Amazon Shopping app
  2. Navigate to the main menu (=)
  3. Tap on Settings and then select “AmazonSmile”
  4. Select MLD Foundation and then follow the on-screen instructions to turn ON AmazonSmile in the mobile app
  5. Once AmazonSmile has been activated in your app, all eligible app purchases will generate a donation for MLD Foundation.
    Note: The tablet app is not yet supported. Please visit smile.amazon.com/onthego to learn more.

Please ask your friends and extended family to shop to benefit MLD Foundation, too!

1 thought on “We’re thankful for you!”

  1. Happy thanksgiving, Suhr family! We are thankful for folks like you who have poured your heart into serving MLD families. May God bless you!

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