Rare Disease Week

Minnesota at Rare Disease Week on the Hill

2 Comments / Advocacy, Awareness, Education, Policy / MLD Foundation / March 21, 2017 / Alberts, Capitol Hill, Minnesota, policy, Rare Disease Week, RDW, Robertson

Last year when I read Kim Brown’s blog on her experience on the Hill for Rare Disease Week 2016, I told my husband, Trevis, that I wanted to go to Washington DC in 2017 and be an advocate for our precious son, Thomas, who left this earth to become an angel in October of 2015. […]

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Minnesota at Rare Disease Week on the Hill

Our first Rare Disease Week in DC

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