

MLD Foundation is proud to have jointly organized and hosted the world’s first MLD Family Conference® in 1999, and to have continued that legacy by organizing and hosting the only MLD-focused conferences around the world for 20+ years.
MLD Family Conferences are where the MLD Family™ comes together to get to know and support each other, learn how to improve the quality of life for their loved ones and the rest of their family, support research, and advance policy including newborn screening.
MLD Foundation also hosts smaller and more intimate MLD Family Gathering™ events across the USA and internationally with MLD families.
Primary unrestricted grants for MLD Family Conferences through 2019 generously provided by Shire/Takeda , from 2018-19 by Orchard Therapeutics, and in 2023 by Sanofi Takeda, and Affinia Therapeutics
© 2023, MLD Foundation, all rights reserved. Legal and trademarks
MLD Foundation is proud to have jointly organized and hosted the world’s first MLD Family Conference® in 1999, and to have continued that legacy by organizing and hosting the only MLD-focused conferences around the world for 20+ years.
MLD Family Conferences are where the MLD Family™ comes together to get to know and support each other, learn how to improve the quality of life for their loved ones and the rest of their family, support research, and advance policy including newborn screening.
MLD Foundation also hosts smaller and more intimate MLD Family Gathering™ events across the USA and internationally with MLD families.
Primary unrestricted grants for MLD Family Conferences through 2019 generously provided by Shire/Takeda , from 2018-19 by Orchard Therapeutics, and in 2023 by Sanofi Takeda, and Affinia Therapeutics
© 2023, MLD Foundation, all rights reserved. Legal and trademarks
Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio, United States, 45229
Principal Investigator: Loren Pena, MD
Phone: +1 513-636-7297
email: Loren.Pena@cchmc.org
While not necessary, we’d encourage you to contact us (click to email or call +1 503-656-4808) before you reach out to the PI. We can often help you assess your loved one’s eligibility and personally know many of the PI’s so we can help to expedite the process of connecting your doctor to the PI.
Ann & Robert H. Lurie Children’s Hospital of Chicago
Chicago, Illinois, United States, 60611
Principal Investigator: Barbara Burton, MD
Phone: +1 312-227-6120
email: bburton@luriechildrens.org
While not necessary, we’d encourage you to contact us (click to email or call +1 503-656-4808) before you reach out to the PI. We can often help you assess your loved one’s eligibility and personally know many of the PI’s so we can help to expedite the process of connecting your doctor to the PI.