The Premier Family Resource for Metachromatic Leukodystrophy Information & Support since 1999!
Where The MLD Family™ Gathers
2023 MLD Family Conference™
July 14-15 in Knoxville, TN.
We are looking forward to getting back together in person (and virtually) this summer!
Our 24th year of hosting the world’s only MLD-focused conference. Meet other families, leading MLD clinicians and researchers, and other rare disease experts.
Join us as we learn about how to provide your MLD loved one (and you) the best quality of life possible, emerging therapies, MLD newborn screening, how to impact policy including gene therapy reimbursement, and the FDA/regulatory approvals.
Families are encouraged to bring their MLD loved ones and other children to the conference! Those with MLD angels are especially welcomed – we will host our traditional MLD Family Butterfly Release in honor and memory of all the angels since 2019 when we last met in person.
Registration and scholarship information will be available in April.