Where the MLD Family Gathers℠ ...

MLD Family Conference®

MLD Foundation is proud to have jointly organized and hosted the world’s first MLD Family Conference® in 1999, and to have continued that legacy by organizing and hosting the only MLD-focused conferences around the world for 25 years.

MLD Family Conferences are where the MLD Family™ comes together to get to know and support each other, learn how to improve the quality of life for their loved ones and the rest of their family,  support research, and advance policy including newborn screening.

MLD Foundation also hosts smaller and more intimate MLD Family Gathering™ events across the USA and internationally with MLD families.

Upcoming MLD Family Conference dates:
  • 2024 dates and information coming soon!
Historical MLD Family Conference dates:

Unrestricted grants supporting MLD Family Conferences through 2019 were generously provided by Shire/Takeda , from 2018-19 by Orchard Therapeutics, and in 2023 by Sanofi, Takeda, and Affinia Therapeutics

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