Dean & Teryn Suhr Win the 2025 WORLDsymposium™ PAL Award
On Wednesday, Feb 5th, 2025 Dean & Teryn Suhr, co-Founders of MLD Foundation, were awarded the 2025 PLA (Patient Advocacy Leadership) Award by from WORLDsymposium™, a consortium of over 1800 lysosomal disease researchers, academia, institutional, biotech, and advocacy leaders.
A sincere congratulations to Dean & Teryn Suhr, the recipient of the esteemed WORLDSymposium 2025 Patient Advocate Leader (PAL) Award. Dean & Teryn co-founded the MLD Foundation and have been involved in over a dozen MLD research projects, and they continue to work to advance rare disease policies & regulations.The death of their youngest daughter, Darcee, plunged them into their 2+ decades of work for Metachromatic Leukodystrophy. Upon realizing MLD was also a lysosomal disease they turned to learning more about the LDs and exploring possible connections in the Lysosomal space. The Suhrs have also been attending, educating, and networking at WORLDSymposium for the last 20 years.
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Thank You
