Updates

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Update on the MLD NBS RUSP Nomination – and Newborn Screening in General

We’re still moving the MLD RUSP nomination forward. We gave/discussed this update at two NBS meetings last week, on an EveryLife Foundation Community Congress ad-hoc call, and in numerous conversations with other patient advocacy groups and bio-pharma companies.  We don’t want to leave the MLD community and families out of the update loop, hence this […]

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