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Honoring Olivia 2020

$1,295 of $2,000 raised

Team Thea Donations

Thank you Team Thea for your support!  This page is for additional donations.  If you are wanting to register for the event please click here.

We C.A.R.E. text only
MLD-logo-–-Celebrating-20-years-of-C.A.R.E.-3300x2084-3
MLD-logo-–-Celebrating-20-years-of-C.A.R.E.-3300x2084-3

The Premier Family Resource for Metachromatic Leukodystrophy Information & Support since 1999!

  • Home
  • MLD Therapies
    • Gene Therapy
    • Enzyme Replacement Therapy (ERT)
  • Sequencing
  • MLD Family Conference®
    • 2023 – Conference Information & Registration
    • MLD Family Conference® – Agenda
  • Updates
  • Donations
  • 20+ Years of We C.A.R.E.®
  • Contact Us
Menu
  • Home
  • MLD Therapies
    • Gene Therapy
    • Enzyme Replacement Therapy (ERT)
  • Sequencing
  • MLD Family Conference®
    • 2023 – Conference Information & Registration
    • MLD Family Conference® – Agenda
  • Updates
  • Donations
  • 20+ Years of We C.A.R.E.®
  • Contact Us
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Donation Total: $30.00

Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio, United States, 45229
Principal Investigator: Loren Pena, MD
Phone: +1 513-636-7297
email:  Loren.Pena@cchmc.org

While not necessary, we’d encourage you to contact us (click to email or call +1 503-656-4808) before you reach out to the PI. We can often help you assess your loved one’s eligibility and personally know many of the PI’s so we can help to expedite the process of connecting your doctor to the PI.

Ann & Robert H. Lurie Children’s Hospital of Chicago
Chicago, Illinois, United States, 60611
Principal Investigator: Barbara Burton, MD
Phone: +1 312-227-6120
email: bburton@luriechildrens.org

While not necessary, we’d encourage you to contact us (click to email or call +1 503-656-4808) before you reach out to the PI. We can often help you assess your loved one’s eligibility and personally know many of the PI’s so we can help to expedite the process of connecting your doctor to the PI.

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  • A MLD Patient
  • Extended Family or Friend
  • Wanting to Learn More
  • Seeking a Newborn Screening
  • Wanting to Enroll in a Clinical Trial
  • Needing Help with Next Steps
  • Looking to Help