Eric unexpectedly passed away Thursday, July 24th, 2025. He was a friend to many, a passionate father, and MLD advocate.
Your donation honors Eric and his friendship, while supporting the work of MLD Foundation. Eric was a friend to many in the Scottsdale and Phoenix area. He loved his wife Christine and his twin boys, Carter and Will, who are heading to college in just a few weeks.
Eric lost his 8 year-old daughter, Olivia, to metachromatic leukodystrophy in late 2010. He struggled with his daughter’s journey as she progressed and succumbed to MLD. Eric became a regular at the annual MLD Family Conference® and always made it a point to connect with the families, especially fathers of newly diagnosed children. He was a rock of practical support and encouragement to everyone.
Your donation in Eric’s memory will go to MLD Foundation, a 501c3 charity which is currently celebrating its 25th year serving MLD families. Over those 25 years, they have shepherded the research, clinical trials, and the FDA & EMA approvals of a curative gene therapy. Our 2025-26 focus is national MLD newborn screening so babies will be identified pre-symptomatically and able to be referred to the gene therapy so they can live normal lives, and improving Medicaid access across state lines. Our mission is We C.A.R.E.® … facilitating Compassion for families, increasing Awareness, influencing & funding Research, and promoting Education for metachromatic leukodystrophy, a very rare terminal genetic neuro-metabolic lysosomal disease where over half the cases affect infants.