The Premier Family Resource for Metachromatic Leukodystrophy Information & Support since 1999!
Where the MLD Family™ Gathers ...
MLD Family Conference™
MLD Foundation is proud to have jointly organized and hosted the world’s first MLD Family Conference™ in 1999, and to have continued that legacy by organizing and hosting the only MLD-focused conferences around the world for 20+ years.
MLD Family Conferences are where the MLD Family™ comes together to get to know and support each other, learn how to improve the quality of life for their loved ones and the rest of their family, support research, and advance policy including newborn screening.
MLD Foundation also hosts smaller and more intimate MLD Family Gathering™ events across the USA and internationally with MLD families.
Upcoming MLD Family Conference dates:
Historical MLD Family Conference dates:
- For the safety of our MLD loved ones during the COVID pandemic we did not host in-person conferences in 2020, 2021, and 2022.
- Nashville, TN, USA – June, 2019
- Plymouth Meeting (Philadelphia), PA, USA – July, 2018
- Suffolk, VA, USA – July, 2017
- Tarrytown (New York City), NY, USA – July, 2016
- Newark, DE, USA – July, 2015
- Pittsburgh, PA, USA – July, 2014
- Parsippany, NJ, USA – August, 2013
- Charlotte, NC, USA – August, 2013
- Baltimore, MD, USA – June, 2012
- Wellington/Upper Hutt, New Zealand – February, 2011
- Melbourne, Australia – March, 2011
- Warwick/London, England – June, 2011
- Cleveland, Ohio, USA – 2010
- Tokyo, Japan – 2010
- Philadelphia, PA, USA – 2009
- Tokyo, Japan – 2009
- Boston, MA, USA – 2007
- Durham, NC, USA – 2006
- Pittsburgh, PA, USA – 2002
- Minneapolis, MN, USA – 1999 (a collaborative conference with the University of Minnesota)
Primary unrestricted grants for MLD Family Conferences through 2019 generously provided by Shire/Takeda 
, and from 2018-19 by Orchard Therapeutics .
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