WORLD is less than 4 weeks away
Happy New Year!
It’s just under 4 weeks until WORLD starts and we need to formalize the details of our 7pm Wednesday Feb. 9th MLD EAG Meeting.
Please confirm and SUBMIT the following brief survey. THANKS!

The Premier Family Resource for Metachromatic Leukodystrophy Information & Support since 1999!
Happy New Year!
It’s just under 4 weeks until WORLD starts and we need to formalize the details of our 7pm Wednesday Feb. 9th MLD EAG Meeting.
Please confirm and SUBMIT the following brief survey. THANKS!
Happy New Year!
It’s just under 4 weeks until WORLD starts and we need to formalize the details of our 7pm Wednesday Feb. 9th MLD EAG Meeting.
Please confirm and SUBMIT the following brief survey. THANKS!
Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio, United States, 45229
Principal Investigator: Loren Pena, MD
Phone: +1 513-636-7297
email: Loren.Pena@cchmc.org
While not necessary, we’d encourage you to contact us (click to email or call +1 503-656-4808) before you reach out to the PI. We can often help you assess your loved one’s eligibility and personally know many of the PI’s so we can help to expedite the process of connecting your doctor to the PI.
Ann & Robert H. Lurie Children’s Hospital of Chicago
Chicago, Illinois, United States, 60611
Principal Investigator: Barbara Burton, MD
Phone: +1 312-227-6120
email: bburton@luriechildrens.org
While not necessary, we’d encourage you to contact us (click to email or call +1 503-656-4808) before you reach out to the PI. We can often help you assess your loved one’s eligibility and personally know many of the PI’s so we can help to expedite the process of connecting your doctor to the PI.