Honoring Olivia 2020

$1,295 of $2,000 raised

Welcome to MLD Foundation’s ACTION Page!

Together We C.A.R.E^®

Educate Yourself about MLD

MLD-101 – genetics, disease forms, & progression

MLD Therapies

Gene Therapy Update

Newborn Screening

MLD Newborn Screening website

State by State policy & implementation

RUSP Nomination

MLD Updates & Policy

Subscribe to MLD Foundation blog & respond to Calls to Action

Subscribe to MLD Foundation announcement email list (6-8 emails per year)

Support the work of MLD Foundation

MLD-101 – genetics, disease forms, & progression

Spread the word among your family & friends

Like & share MLD Foundation’s Facebook page

Tweet about MLD

Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio, United States, 45229
Principal Investigator: Loren Pena, MD
Phone: +1 513-636-7297
email: Loren.Pena@cchmc.org

While not necessary, we’d encourage you to contact us (click to email or call +1 503-656-4808) before you reach out to the PI. We can often help you assess your loved one’s eligibility and personally know many of the PI’s so we can help to expedite the process of connecting your doctor to the PI.

Ann & Robert H. Lurie Children’s Hospital of Chicago
Chicago, Illinois, United States, 60611
Principal Investigator: Barbara Burton, MD
Phone: +1 312-227-6120
email: bburton@luriechildrens.org