Welcome to MLD Foundation’s ACTION Page!
Together We C.A.R.E®
Support the work of MLD Foundation
Your donation helps us as We C.A.R.E.® … Compassion for families, increasing Awareness, influencing & funding Research, and promoting Education for metachromatic leukodystrophy, a very rare terminal genetic neuro-metabolic lysosomal disease where over half the cases affect infants.
Educate Yourself about MLD
MLD-Overview – genetics, disease forms, & progression
Animated “whiteboard” video – layperson friendly and short video
MLD Therapies
Gene Therapy Update
Newborn Screening
MLD Newborn Screening website
State by State policy & implementation
RUSP Nomination
MLD Updates & Policy
Subscribe to MLD Foundation announcement email list to be kept up to date on MLD news and policy updates.
Subscribe to MLD Foundation blog & respond to Calls to Action
Subscribe to MLD Foundation announcement email list (6-8 emails per year)