Welcome to MLD Foundation’s ACTION Page!

Together We C.A.R.E®

Educate Yourself about MLD

MLD-101 – genetics, disease forms, & progression

MLD-101 – genetics, disease forms, & progression

MLD Therapies

Gene Therapy Update

Newborn Screening

MLD Newborn Screening website

State by State policy & implementation

RUSP Nomination

MLD Updates & Policy

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Your donation helps us as We C.A.R.E.®Compassion for families, increasing Awareness, influencing & funding Research, and promoting Education for metachromatic leukodystrophy, a very rare terminal genetic neuro-metabolic lysosomal disease where over half the cases affect infants.

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